Sharron L. Docherty, PhD, PNP-BC, FAAN
Sharron Docherty, Associate Professor, joined the faculty of the Duke University School of Nursing in 2002. She has practiced as a Pediatric Nurse Practitioner and served as the director of the pediatric acute/chronic care nurse practitioner specialties from 2002-2010. She received her BScN from the University of Windsor, her MScN from the University of Western Ontario, and earned her PhD in Nursing at UNC-Chapel Hill in 1999.
Dr. Docherty is the Co-Director of the ADAPT Center for Excellence in Cognitive/Affective Symptom Science and a Senior Scientist in the Oncology Nursing Center of Excellence at the Duke Cancer Institute. At UNC-CH, she is adjunct faculty in School of Nursing and mentor faculty for the Center for Developmental Science. Dr. Docherty is a Fellow of the American Academy of Nursing. She is also a member of NAPNAP (National Association of Pediatric Nurse Practitioners), Society for Research in Child Development, Southern Nursing Research Society, and Sigma Theta Tau.
Academic Program Affiliations
- PhD in Nursing Program
- Doctor of Nursing Practice Program
- Master of Science in Nursing Program
- PhD - University of North Carolina-Chapel Hill School of Nursing
- MScN - University of Western Ontario
- BScN - University of Windsor
Awards and Honors
- 2014 || 2014 SNRS Mid-Career Researcher Award, Southern Nursing Research Society (SNRS)
- 2013 || Fellow, American Academy of Nursing
- 2008 || Donna Wong Pediatric Nursing Writers Award, Pediatric Nursing Journal
- 2000 || Participant, Serrambi, Brazil Summer School, Center for Developmental Science
- 1997 || Elizabeth Scott Carrington Scholarship, School of Nursing ($2500), University of North Carolina at Chapel Hill
- 1997 || Predoctoral Training Fellowship, Carolina Consortium on Human Development ($8000), University of North Carolina at Chapel Hill ($8000)
- 1996 || Linda Waring Matthews Oncology Nursing Scholarship, UNC School of Nursing
- 1995 || Cancer Education Program Assistantship, UNC-CH, Lineberger Comprehensive Cancer Center
- 1994 || Dr. Alfreda Simons Kartha Excellence in Nursing Education Award, Sigma Theta Tau International Honour Society of Nursing - Iota Omicron Chapter
- 1994 || Faculty of Nursing Doctoral Study Award ($1000), University of Western Ontario
- 1994 || Hospital for Sick Children Foundation Fellowship, Canadian Nurses Foundation
- 1989 || Inducted, Sigma Theta Tau, Iota Omicron Chapter
- 1985 || Undergraduate Class Valedictorian, University of Windsor, University of Windsor
Areas of Interest
• Parental Caregivers of Children Post Stem Cell Transplant
• Symptom Distress in Children with Cancer
• Symptom Distress in Chronically Ill Children
• Decision Making for Children with Life-Threatening Illnesses
• Palliative Care for Children with Life-Threatening Illnesses
• Longitudinal Designs and Analysis
• Case Study Design and Analysis
• Qualitative and Mixed Method Design and Analysis
• Visualization Methods of Analysis
• Biological Markers of Stress in Ill Children
• Interviewing Children
- 2008 -- Brooks, J. L. and Docherty, S. L. SMA notes from the field: Lumbee mothers and infant care. Anthropology News. November, 2008 .
- 2006 -- Docherty, S. L. Childhood cancer (Chapter 38) October, 2006 .
- 2007 -- Docherty, S. L. Childhood cancer (Ch. 38) February, 2007 .
- 2010 -- PubMed # : 20379916 -- Barfield, R. C. and Brandon, D. and Thompson, J. and Harris, N. and Schmidt, M. and Docherty, S. Mind the child: using interactive technology to improve child involvement in decision making about life-limiting illness. Am J Bioeth. April, 2010 10(4); 28-30.
- 2011 -- PubMed # : 21147402 -- Hawkins-Walsh, E. and Berg, M. and Docherty, S. and Lindeke, L. and Gaylord, N. and Osborn, K. A national survey of the primary and acute care pediatric nurse practitioner educational preparation. J Pediatr Health Care. Jan-Feb, 2011 25(1); 5-15.
- 2011 -- Docherty, S. L. Care of the medically fragile child. (Chapter 11). July 25, 2011 .
- 2011 -- PubMed # : 21147410 -- Berg, M. and Hawkins-Walsh, E. and Gaylord, N. and Lindeke, L. and Docherty, S. L. Emerging issues regarding pediatric nurse practitioner education in acute and primary care. J Pediatr Health Care. Jan-Feb, 2011 25(1); 62-6.
- 2009 -- PubMed # : 19865004 -- Cox, C. E. and Docherty, S. L. and Brandon, D. H. and Whaley, C. and Attix, D. K. and Clay, A. S. and Dore, D. V. and Hough, C. L. and White, D. B. and Tulsky, J. A. Surviving critical illness: acute respiratory distress syndrome as experienced by patients and their caregivers. Crit Care Med. October, 2009 37(10); 2702-8. PMC2771584
- 2007 -- PubMed # : 18069427 -- Docherty, S. L. and Lowry, C. and Miles, M. S. Poverty as context for the parenting experience of low-income Lumbee Indian mothers with a medically fragile infant. Neonatal Netw. November-December 26(6); 361-9.
- 2007 -- Docherty, S. L. Advanced practice nurses in pediatric hospital care. September, 2007 14-18.
- 2007 -- PubMed # : 17907734 -- Docherty, S. L. and Miles, M. S. and Brandon, D. Searching for "the dying point:" providers' experiences with palliative care in pediatric acute care. Pediatr Nurs. November, 2007 33(4); 335-41.
- 2007 -- PubMed # : 17803413 -- Brandon, D. and Docherty, S. L. and Thorpe, J. Infant and child deaths in acute care settings: implications for palliative care. J Palliat Med. August, 2007 10(4); 910-8.
- 2006 -- PubMed # : 16847909 -- Docherty, S. L. and Sandelowski, M. and Preisser, J. S. Three months in the symptom life of a teenage girl undergoing treatment for cancer. Res Nurs Health. August, 2006 29(4); 294-310.
- 2003 -- PubMed # : 12889547 -- Labyak, S. E. and Bourguignon, C. and Docherty, S. Sleep quality in children with juvenile rheumatoid arthritis. Holist Nurs Pract. August, 2003 17(4); 193-200.
- 2003 -- PubMed # : 12858695 -- Docherty, S. L. Symptom experiences of children and adolescents with cancer. Annu Rev Nurs Res. 2003 21(2); 123-49.
- 2002 -- PubMed # : 12881928 -- Docherty, S. L. and Miles, M. S. and Holditch-Davis, D. Worry about child health in mothers of hospitalized medically fragile infants. Adv Neonatal Care. April, 2002 2(2); 84-92.
- 2001 -- PubMed # : 11526617 -- Holditch-Davis, D. and Docherty, S. and Miles, M. S. and Burchinal, M. Developmental outcomes of infants with bronchopulmonary dysplasia: comparison with other medically fragile infants. Res Nurs Health. June, 2001 24(3); 181-93.
- 1999 -- PubMed # : 11885066 -- Miles, M. S. and Wilson, S. M. and Docherty, S. L. African American mothers' responses to hospitalization of an infant with serious health problems. Neonatal Netw. December, 1999 18(8); 17-25.
- 1999 -- PubMed # : 10094302 -- Docherty, S. and Sandelowski, M. Interviewing children. Res Nurs Health. April, 1999 22(2); 177-85.
- 1997 -- PubMed # : 9256882 -- Sandelowski, M. and Docherty, S. and Emden, C. Focus on qualitative methods. Qualitative metasynthesis: issues and techniques. Res Nurs Health. August, 1997 20(4); 365-71.
- 1992 -- PubMed # : 1574213 -- Laschinger, H. K. and Docherty, S. and Dennis, C. Helping students use nursing models to guide research. Nurse Educ. June, 1992 17(2); 36-8.
- 2011 -- PubMed # : 21605319 -- Kelley, T. F. and Brandon, D. H. and Docherty, S. L. Electronic nursing documentation as a strategy to improve quality of patient care. J Nurs Scholarsh. June, 2011 43(2); 154-62.
- 2013 -- PubMed # : 22888806 -- Shepperd, J. A. and Lipkus, I. M. and Sanderson, S. C. and McBride, C. M. and O'Neill, S. C. and Docherty, S. Testing different communication formats on responses to imagined risk of having versus missing the GSTM1 gene. J Health Commun. January, 2013 18(1); 124-37. PMC3543503
- 2011 -- PubMed # : 21860660 -- Docherty, S. L. and McBride, C. M. and Sanderson, S. C. and O'Neill, S. C. and Shepperd, J. A. and Lipkus, I. M. Young smokers' views of genetic susceptibility testing for lung cancer risk: minding unintended consequences. J Community Genet. September, 2011 2(3); 165-172.
- 2011 -- PubMed # : 21994831 -- Adams, J. A. and Bailey Jr, D. E. and Anderson, R. A. and Docherty, S. L. Nursing Roles and Strategies in End-of-Life Decision Making in Acute Care: A Systematic Review of the Literature. Nurs Res Pract. October, 2011 2011 527834. PMC3184494
- 2012 -- Docherty, S. L. and Barfield, R. and Thaxton, C. and Brandon, D. Quality of life for children living with chronic or complex diseases (Chapter 18). October, 2012 .
- 2012 -- PubMed # : 22512806 -- Tan, J. S. and Docherty, S. L. and Barfield, R. and Brandon, D. H. Addressing parental bereavement support needs at the end of life for infants with complex chronic conditions. J Palliat Med. May, 2012 15(5); 579-84.
- 2011 -- PubMed # : 22012943 -- Robb, S. L. and Burns, D. S. and Docherty, S. L. and Haase, J. E. Ensuring treatment fidelity in a multi-site behavioral intervention study: implementing NIH Behavior Change Consortium recommendations in the SMART trial. Psychooncology. November, 2011 20(11); 1193-201.
- 2012 -- PubMed # : 22414540 -- Kassmann, B. P. and Docherty, S. L. and Rice, H. E. and Bailey Jr, D. E. and Schweitzer, M. Telephone follow-up for pediatric ambulatory surgery: parent and provider satisfaction. J Pediatr Nurs. December, 2012 27(6); 715-24.
- 2012 -- PubMed # : 22658379 -- Hendricks-Ferguson, V. L. and Cherven, B. O. and Burns, D. S. and Docherty, S. L. and Phillips-Salimi, C. R. and Roll, L. and Stegenga, K. A. and Donovan Stickler, M. and Haase, J. E. Recruitment Strategies and Rates of a Multi-Site Behavioral Intervention for Adolescents and Young Adults With Cancer. J Pediatr Health Care. June, 2012 . PMC3448870
- 2012 -- Bailey Jr., D. E. and Docherty, S. L. and Adams, J. A. and Carthron, D. L. and Corazzini, K. and Day, J. R. and Neglia, E. and Thygeson, M. and Anderson, R. A.. Studying the clinical encounter with the Adaptive Leadership framework. Journal of Healthcare Leadership. August, 2012 2012(4); 83-91.
- 2012 -- PubMed # : 22744911 -- O'Neill, S. C. and Lipkus, I. M. and Sanderson, S. C. and Shepperd, J. and Docherty, S. and McBride, C. M. Motivations for genetic testing for lung cancer risk among young smokers. Tob Control. June 2012, Epub ahead of print .
- 2012 -- PubMed # : 23641169 -- Docherty, S. L. and Thaxton, C. and Allison, C. and Barfield, R. C. and Tamburro, R. F. The nursing dimension of providing palliative care to children and adolescents with cancer. Clin Med Insights Pediatr. September, 2012 6 75-88. PMC3620813
- 2013 -- PubMed # : 23316896 -- Uhl, T. and Fisher, K. and Docherty, S. L. and Brandon, D. H. Insights into patient and family-centered care through the hospital experiences of parents. J Obstet Gynecol Neonatal Nurs. 42(1); 121-31.
- 2013 -- PubMed # : 23332481 -- Docherty, S. L. and Robb, S. L. and Phillips-Salimi, C. and Cherven, B. and Stegenga, K. and Hendricks-Ferguson, V. and Roll, L. and Donovan Stickler, M. and Haase, J. Parental perspectives on a behavioral health music intervention for adolescent/young adult resilience during cancer treatment: Report from the Children's Oncology Group. J Adolesc Health. February, 2013 52(2); 170-8.
- 2001 -- Docherty, S. L. Physical assessment of the preschool-aged child (instructional video package). 2001 .
- 2013 -- PubMed # : 23767335 -- Horigan, A. E. and Schneider, S. M. and Docherty, S. and Barroso, J. The experience and self-management of fatigue in patients on hemodialysis. Nephrol Nurs J. March-April, 2013 40(2); 113-22; quiz 123. PMC3703392
- 2013 -- PubMed # : 24139063 -- Wooden, S. and Docherty, S. and Plaus, K. and Kusek, A. and Vacchiano, C. Exploration of Specialty Certification for Nurse Anesthetists: Nonsurgical Pain Management as a Test Case. Pain Manag Nurs. October, 2013, Epub ahead of print .
- 2013 -- PubMed # : 24102024 -- Roll, L. and Stegenga, K. and Hendricks-Ferguson, V. and Barnes, Y. J. and Cherven, B. and Docherty, S. L. and Robb, S. L. and Haase, J. E. Engaging nurses in research for a randomized clinical trial of a behavioral health intervention. Nurs Res Pract. September, 2013 2013 183984. PMC3786524
- 2013 -- PubMed # : 24169113 -- Kelley, T. and Docherty, S. and Brandon, D. Information needed to support knowing the patient. ANS Adv Nurs Sci. Oct-Dec, 2013 36(4); 351-63.
- 2013 -- PubMed # : 23972784 -- Pickler, R. H. and Calamaro, C. and Docherty, S. and Goodhue, C. J. and Magee, T. and McCarthy, A. M. and Sadler, L. and Small, L. and Spratling, R. and Van Cleve, S. N. and D'Auria, J. and Jones, D. C. NAPNAP research agenda revisions: preliminary survey results. J Pediatr Health Care. Sep-Oct, 2013 27(5); 390-4.
- 2014 -- PubMed # : 24222509 -- Shepperd, J. A. and Novell, C. A. and O'Neill, S. C. and Docherty, S. L. and Sanderson, S. C. and McBride, C. M. and Lipkus, I. M. Contemplating genetic feedback regarding lung cancer susceptibility. Ann Behav Med. June, 2014 47(3); 395-403. PMC4008648
- 2014 -- PubMed # : 24469862 -- Robb, S. L. and Burns, D. S. and Stegenga, K. A. and Haut, P. R. and Monahan, P. O. and Meza, J. and Stump, T. E. and Cherven, B. O. and Docherty, S. L. and Hendricks-Ferguson, V. L. and Kintner, E. K. and Haight, A. E. and Wall, D. A. and Haase, J. E. Randomized clinical trial of therapeutic music video intervention for resilience outcomes in adolescents/young adults undergoing hematopoietic stem cell transplant: A report from the Children's Oncology Group. Cancer. March, 2014 120(6); 909-17. PMC3947727
- 2014 -- PubMed # : 24529903 -- Spratling, R. and Pickler, R. H. and Calamaro, C. and Dale, J. C. and Docherty, S. and Goodhue, C. J. and Kilanowski, J. and McCarthy, A. M. and O'Laughlen, M. C. and Sadler, L. S. and Small, L. and Speer, K. and Thomas, T. and Van Cleve, S. and D'Auria, J. and Jones, D. C. NAPNAP research agenda: 2014-2019. J Pediatr Health Care. May-June, 2014 28(3); 272-5.
- 2014 -- Hendricks-Ferguson, V. L. and Cherven, B. O. and Burns, D. S. and Docherty, S. L. and Phillips-Salimi, C. R. and Roll, L. and Stegenga, K. A. and Stickler, M. D. and Haase, J. E. Dataset : Recruitment Article - Smart study February, 2014 .
- 2014 -- PubMed # : 24556984 -- Sanderson, S. C. and McBride, C. M. and O'Neill, S. C. and Docherty, S. and Shepperd, J. and Lipkus, I. M. Young Smokers' Interpretations of the Estimated Lung Cancer Risk Associated with a Common Genetic Variant of Low Penetrance. Public Health Genomics. .
- 2014 -- PubMed # : 24582896 -- Schweitzer, M. and Aucoin, J. and Docherty, S. L. and Rice, H. E. and Thompson, J. and Sullivan, D. T. Evaluation of a discharge education protocol for pediatric patients with gastrostomy tubes. J Pediatr Health Care. February, 2014 28(5); 420-8.
- 2014 -- PubMed # : 24655938 -- Adams, J. A. and Anderson, R. A. and Docherty, S. L. and Tulsky, J. A. and Steinhauser, K. E. and Bailey Jr, D. E. Nursing strategies to support family members of ICU patients at high risk of dying. Heart Lung. March, 2014 .
- 2014 -- PubMed # : 24759312 -- Brandon, D. and Ryan, D. and Sloane, R. and Docherty, S. L. Impact of a pediatric quality of life program on providers' moral distress. MCN Am J Matern Child Nurs. May-June, 2014 39(3); 189-97.
- 2014 -- PubMed # : 25057001 -- McLaughlin, C. A. and Hockenberry, M. J. and Kurtzberg, J. and Hueckel, R. and Martin, P. L. and Docherty, S. L. Standardization of health care provider competencies for intrathecal access procedures. J Pediatr Oncol Nurs. Nov-Dec, 2014 31(6); 304-16.
- 2014 -- PubMed # : 25102209 -- Kelley, T. and Docherty, S. and Brandon, D. Letter to the editor. ANS Adv Nurs Sci. July, 2014 37(3); 192.
- 2014 -- PubMed # : 25054525 -- Waterhouse, J. and Bandisode, V. and Brandon, D. and Olson, M. and Docherty, S. L. Evaluation of the use of a stabilization device to improve the quality of care in patients with peripherally inserted central catheters. AACN Adv Crit Care. Jul-Sep, 2014 25(3); 213-20.
- 2015 -- PubMed # : 25647829 -- Anderson, R. A. and Bailey Jr, D. E. and Wu, B. and Corazzini, K. and McConnell, E. S. and Thygeson, N. M. and Docherty, S. L. Adaptive leadership framework for chronic illness: framing a research agenda for transforming care delivery. ANS Adv Nurs Sci. April-June, 2015 38(2); 83-95. PMC4417005
- 2014 -- PubMed # : 25365282 -- Caiola, C. and Docherty, S. L. and Relf, M. and Barroso, J. Using an intersectional approach to study the impact of social determinants of health for African American mothers living with HIV. ANS Adv Nurs Sci. Oct-Dec, 2014 37(4); 287-98.
- 2015 -- PubMed # : 25721716 -- Brooks, J. L. and Holditch-Davis, D. and Docherty, S. L. and Theodorou, C. S. Birthing and Parenting a Premature Infant in a Cultural Context. Qual Health Res. February, 2015 Epub ahead of print .
- 2014 -- Allen, K. A. and Brandon, D. H. and Holditch-Davis, D. and Cotton, C. M. and Docherty, S. L. Parent and provider decision-making for infants with hypoxic-ischemic encephalopathy Journal of Pregnancy and Child Health. August, 2014 1 106.
- 2015 -- PubMed # : 26210197 -- Docherty, S. L. and Kayle, M. and Maslow, G. R. and Santacroce, S. J. The Adolescent and Young Adult with Cancer: A Developmental Life Course Perspective. Semin Oncol Nurs. 31(3); 186-96.
- 2015 -- PubMed # : 26250061 -- Redeker, N. S. and Anderson, R. and Bakken, S. and Corwin, E. and Docherty, S. and Dorsey, S. G. and Heitkemper, M. and McCloskey, D. J. and Moore, S. and Pullen, C. and Rapkin, B. and Schiffman, R. and Waldrop-Valverde, D. and Grady, P. Advancing Symptom Science Through Use of Common Data Elements. J Nurs Scholarsh. September, 2015 47(5); 379-88. PMC4618317
Grant Funding (Selected)
Stigma Experiences, Affective Symptoms, and Engagement in Care among Women Aging with HIVNational Institutes of Health
09/2012 to 06/2017
Phenotypic and Genotypic Associations with Symptom Clusters During Childhood Leukemia TreatmentNIH / National Cancer Institute
1R01 NR010548 01A1
09/2012 to 06/2017
Project Goal: To search for genetic variants associated with the oxidative stress and inflammatory pathways as well as explore CNS oxidative stress and cytokine biomarkers, and their relationships with symptom clusters. A repeated measures research design is used to evaluate the number and severity of treatment symptoms, including fatigue, sleep disturbance, pain, depression, nausea, physical activity changes, memory and cognition deficits, CSF oxidative stress and cytokine biomarkers, experienced by 400 children and adolescents, 3-18 years of age, with a diagnosis of leukemia during the most intense phase of treatment.
Decision-Making for Infants with Complex Life-Threatening ConditionsNational Institutes of Health/National Institute of Nursing Research
09/2008 to 07/2013
Project Goals: This longitudinal multiple case study will examine the trajectory of decision-making for infants undergoing life-sustaining treatment for a complex life-threatening conditions and factors influencing parent’s decision-making.
Decision tree modeling of return of whole genome sequencing resultsDuke Institute for Genome Sciences and Policy (Collaborative & Interdisciplinary Grant )
04/2012 to 03/2013
Decisions regarding whether, when, how, and what kinds of results from whole genome sequencing (WGS) should be disclosed to patients and families are fraught, involving a range of technical, clinical, ethical, and regulatory considerations. In particular, performing WGS under a research protocol but for a clinical purpose (e.g., to assist in the diagnosis or management of a serious health condition for which traditional approaches have been exhausted), places the interpretation of results and the decision about their return at the interface between research and clinical care. This case study will explore the decision making trajectory for the disclosure of whole genome sequencing (WGS) results to families of pediatric patients.
Decision-making for Infants with Complex Life-Threatening ConditionsNational Institutes of Health
02/2010 to 07/2011
Project Goals: This administrative supplement is to develop a flexible data exploratory visualization software program that will allow for the graphic display of multiple layers and varying configurations of different levels of data from a currently funded R01 study.
Administrative Supplement to Decision Making for Infants with Complex Life Threatening ConditionsNational Institutes of Health/National Institute of Nursing Research
09/2009 to 01/2011
This administrative supplement is to develop a flexible data exploratory visualization software program that will allow for the graphic display of multiple layers and varying configurations of different levels of data from a currently funded R01 study.
Pediatric Acute/Chronic Care Nurse Practitioner ProgramHRSA
07/2009 to 06/2012
Project Goals: To expand enrollment and to further develop serious gaming as a QI, critical thinking enhancement skill.
Mother Sibling InteractionsNational Institutes of Health/National Institute of Nursing Research
09/2009 to 07/2011
Project Goals: This longitudinal study explores the impact of a VLBW infant on mother-sibling interactions and sibling adjustment. A comparison group of fullterm infants will be used to determine which sibling adjustment problems are typical of having a new baby in the home and which are associated with the unique stress of having a VLBW infant.
Young Smokers’ Reactions to Genetic Risk for Lung CancerNational Institutes of Health - National Cancer Institute
08/2007 to 06/2011
Project Goals: This study examines whether providing genetic lung cancer susceptibility feedback to college smokers affect their perceptions of risk and worries and motivations to quit.
Stories and Music for Adolescent/Young Adult Resilience During Transplant: The SMART StudyNational Institute of Nursing Research Children’s Oncology Group
1R01 NR008583-01A2: COG ANUR0631
11/2007 to 04/2010
Role: Site PI
Project Goals: This study will test the efficacy of a therapeutic music video (TMV) intervention aimed at increasing resilience and quality of life of adolescents and young adults (AYA) undergoing bone marrow transplant.
Maternal Adjustment to Caregiving for Premature InfantsNational Institute of Nursing Research
07/2007 to 06/2009
Project Goals: The overall purpose of this study is to explore the effects of a preterm infant intervention currently under study (“Preterm Infants: Light Effects on Health and Development” (5R01NR008044-02) IRB # 4211-03-11R1) on maternal adjustment to the hospitalization and post discharge caregiving of a preterm infant.
Mental Health Assessment for Pediatric Nurse PractitionersHealth Resources and Service Administration (HRSA)
01/2007 to 12/2010
Project Goals: Three-year grant to educate nurses through innovative and strengthened curriculum at the Master’s level.
Experiences, Functioning, and Well Being of Fathers of Children Undergoing Hematopoietic Stem Cell TransplantNINR P20 - TRAC Pilot
01/2006 to 12/2008
Project Goals: This pilot study that will inform the design of a larger study addressing parental responses and adjustment patterns during a child’s HSCT and their relationship to the child’s symptom distress as well as health and development outcomes.
The Compass Project: Bridging Medicine, Design, & Ethics to Enable Advance Care Planning & Meaningful Assent in Pediatric Phase I TrialsDuke Univ. School of Nursing Office of Research Affairs Small Grant Program
01/2006 to 05/2011
Project Goals: This study will design and pilot test an instrument that can be used by children with life-threatening illnesses to express their ideas, goals, priorities, and desires, related to quality of life planning, in the context of Phase I trials.
SMART - Theraputic Music VideoIndiana University
11/2007 to 04/2008
Maternal Caregiving of Children Post Stem Cell TransplantNational Institutes of Health
08/2004 to 07/2008
Project Goals: A pilot study that will inform the design of a larger study addressing parental responses and adjustment patterns during a child’s HSCT and their relationship to the child’s symptom distress as well as health and development outcomes.
Pediatric Health Care Provider Attitudes Regarding Palliative Care in the Acute Care SettingDepartmental
01/2004 to 12/2005
Project goals: The purpose of this study is to describe the experiences of physicians, nurses, and social workers in providing palliative care to infants, children, and adolescents who have undergone intensive therapies for life threatening illnesses. The study will identify aids and barriers to the provision of palliative care in the pediatric acute care setting.
Characteristics of Infants and Children Who Die in the Inpatient SettingsDepartmental
01/2004 to 12/2005
Project goals: The purpose of this pilot study is to define the population of infants and children who die in acute care hospitals
Sleep and Symptom Distress in Children with Juvenile Rheumatoid ArthritisNIH Center for Research on Chronic Illness, UNC-Chapel Hill
01/2000 to 12/2002
Project goals: The purpose of this cross-sectional study was to describe and compare sleep behavior, sleep quality and symptom experiences for one week in children with JRA and age and sex-matched healthy controls using self report and wrist actigraphy. At the conclusion, overnight sleep studies (polysomnography) were conducted to evaluate the depth and continuity of sleep in four children. These studies were conducted at the General Clinical Research Center at the University of North Carolina.
Parental Role Attainment with Medically Fragile InfantsNIH/NINR
01/1994 to 12/1999
Role: Research Assistant
Project goals: The purpose of this longitudinal exploratory study was to explore the process of and factors associated with parental role attainment in parents of medically fragile infants.
Patterns of Symptom Distress During the Initial Treatment Period in Three Children with CancerUniversity of North Carolina-Chapel Hill
01/1997 to 12/1999
Predoctoral Training Fellowship, Carolina Consortium on Human Development, University of North Carolina at Chapel Hill Small Grants Program Project goals: The purpose of this longitudinal multiple case study design was to explore patterns of symptom distress over the initial treatment period in children with cancer.
Social Determinants of Health for African American HIV-infected MothersNational Institutes of Health
09/2013 to 08/2015
Fellowship support for dissertation research of Courtney Caiola. This research study examines the lives of African-American HIV-infected mothers and their unique social location and the intersection of the social determinants of health. This work is an essential step in understanding and addressing the disparity in this population’s health outcomes.
Adaptive Challenges for Adolescents with Sickle Cell DiseaseAmerican Nurses Foundation, Inc.
09/2013 to 08/2014
Support for dissertation research of Mariam Kayle. Project goal: Describe and explore the adaptive challenges and solutions of adolescents with sickle cell disease and their parents in self-managing their disease.
Parent and Provider Decision-making for Infants with Hypoxic Ischemic EncephalopathyAmerican Nurses Foundation, Inc.
09/2011 to 08/2012
Support for dissertation research of Kimberly Allen.
Decision-Making for Infants with Hypoxic Ischemic EncephalopathyNational Institutes of Health/ NINR
06/2010 to 05/2013
Role: Sponsor and co-PI
Fellowship supporting research of Dr. Docherty's PhD student Kimberly A. Allen on hypoxic ischemic encephalopathy (HIE). Project goals: Prospective, longitudinal, multiple case study will examine how decision-making trajectories of parents and providers caring for infants with HIE from birth to 6 months of age. To further illuminate how decision-making for infants with HIE develops, the decision-making trajectories for infants with HIE will be compared to those with infants with other complex life-threatening conditions: extremely premature infants (<26 weeks gestational age) and infants with complex cardiac defects (e.g., single ventricle) from an ongoing study. The comparison groups will be used to search for influences that optimize decision-making. The proposed study will provide information to develop interventions to aid parents and providers in decision-making for infants with HIE.