Administrative Core
Specific Aims
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Aim 1: Coordinate and integrate all Center activities.
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Aim 2: Provide administrative staff support to Center investigators (CIs).
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Aim 3: Fund new research pilots related to understanding cognitive/affective symptom experience and symptom sequelae in chronic illness and how to ameliorate symptoms, symptom distress and symptom sequelae using adaptive approaches.
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Aim 4: Promote interactions among CIs to develop new interdisciplinary studies about cognitive/affective symptom experience and symptom sequelae in chronic illness and how to ameliorate symptoms, symptom distress and symptom sequelae using adaptive approaches.
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Aim 5: Evaluate the effectiveness of the Center in achieving its aims.
Scholarship and Mentoring Core
Definitions
Adaptive Leadership: Adaptive leadership encompasses a holistic approach in which patients/families and providers collaborate to co-produce care. In the Adaptive Leadership Framework, monitoring symptoms is not enough. Rather, collaborative work requires trusting interactions: 1) to develop shared meaning of the patient/family response to symptoms and challenges that arise; and 2) to assess personal skills and psychological resources the patient/family already has to engage in adaptive work, and how the provider can support them in gaining any new skills needed for adaptive work. Jointly, the provider and patient/family plan the work that each will do to enhance care.
Technical Challenges: Simple or complicated problems that are definable and for which can expert can provide solutions.
Adaptive Challenges: Complex issues, often difficult to define, and require learning and behavior change by the person(s) experiencing the problem.
Goal of Scholarship and Mentoring Core
Enhance nursing investigators' abilities to develop productive programs of interdisciplinary research to advance symptom science for understanding and ameliorating cognitive/affective symptoms and symptom sequelae in chronic illness using adaptive approaches tailored for minority and socioeconomically disadvantaged populations and people with cognitive/affective changes.
Specific Aims
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Aim 1: Use the Adaptive Leadership framework to advance knowledge to understand and ameliorate symptoms, symptom distress, and symptom sequelae using adaptive approaches for people with cognitive/affective changes in chronic illness.
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Aim 2: Mentor early nursing scientists in conducting research to generate new knowledge for enhancing patients' adaptive abilities for managing cognitive/affective symptoms, symptom distress, and symptom sequelae thus reducing over reliance on technical approaches.
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Aim 3: Increase research participation of people with cognitive/affective changes and minority health needs by mentoring scientists to tailor research approaches and interventions through refining existing, or creating new, protocols and self-report measures (i.e., Patient-Reported Outcomes Measurement Information System [PROMIS]).
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Aim 4: Collaborate with the Methods Core to promote learning and collaboration among center investigators through seminars and a journal club focused on conceptualizing adaptive challenges for people with cognitive/affective changes, tailoring research approaches and developing adaptive-focused interventions.
Services
For more information, email adaptcenter@dm.duke.edu
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Provide expertise regarding use of the Adaptive Leadership framework and generating new knowledge for enhancing patients' adaptive abilities
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Mentor early nursing scientists in research, theory, developing interventions, grants management
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Adaptive Leadership Journal Clubs
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Research Seminars and Distinguished Speakers
Methods Core
Assist investigators to use trajectory methods to: 1) study trajectories of cognitive/affective symptoms and symptom sequelae to describe their patterns, variability, and change over time, and 2) develop tailored interventions to improve patient care. The expected long term outcome from this Core is a new generation of nursing scientists prepared to conduct scientifically sound interdisciplinary research to advance symptom science.
Specific Aims
- Aim 1: Promote and expand bio-behavioral research and trajectory methods (longitudinal and longitudinal mixed methods designs, trajectory analyses, and visualization techniques) in studies to understand and ameliorate symptoms, symptom distress, and symptom sequelae for people with cognitive/affective changes in chronic illness.
- Aim 2: Provide consultation and support for trajectory methods.
- Aim 3: Support database development and management for Center investigators.
- Aim 4: Collaborative with the Scholarship and Mentoring Core to promote learning and collaboration among center investigators through seminars and a journal club focused on measuring cognitive/affective symptoms and trajectory analyses.